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On November 3, twenty-two Team Ritter runners ran the ING NYC Marathon and earned Finisher medals. Although this was not the first time some of the runners had completed a marathon, it may have been the most meaningful for them. Why? Because this race was only one milestone among many during their journey to the marathon.
Over the last five months, Team Ritter’s 2013 ING New York City Marathon running team has informed hundreds of people about thoracic aortic disease by sharing their stories at health fairs, during media interviews, at fundraising events, and by talking to anyone who would listen. To date, they have raised over $114,000 so we can inform and educate the public and medical professionals about thoracic aortic disease, provide support to individuals and families affected by aortic disease, and fund research. And they have done all this while training for a marathon!
We are very proud of our team. Please join us in congratulating Team Ritter on a job well done!
2013 Team Ritter - ING NYC Marathon team with Amy Yasbeck, Stella, and Jason Ritter
A multi-institutional team led by Dianna Milewicz, M.D., Ph.D., of The University of Texas Health Science Center at Houston (UTHealth) has found a recurrent genetic mutation that has been linked to deadly thoracic aortic dissections in family members as young as 17 years of age. The gene known as PRKG1 makes a protein called cGMP-dependent kinase, type I. The PRKG1 mutation alters the function of the protein and causes the muscle cells in the wall of the aorta to respond incorrectly to pulsatile blood flow from the heart, and the change in this one protein ultimately causes thoracic aortic aneurysm and acute aortic dissection. The mutation was identified in four families, including three in the United States. The majority of the affected family members suffered acute aortic dissections at young ages (17 to 51 years).
Milewicz is professor and director of the Division of Genetics at the UTHealth Medical School and holds the President George H.W. Bush Chair in Cardiovascular Research. She is also on the faculty of The University of Texas Graduate School of Biomedical Sciences and director of the The John Ritter Research Program in Aortic and Vascular Diseases. Co-authors and investigators included teams from University of California at San Diego, Institut National de la Sante et de la Recherche Medicále of France, University of Washington, Baylor College of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada, and the GenTAC Registry Consortium. Read more here: http://www.johnritterresearchprogram.org/?p=1046
This is your chance to paint your own masterpiece and raise money to support efforts to increase awareness and genetic research on thoracic aortic aneurysms and dissections. How cool is that?
This event will honor the memory of Cliff Klein and the positive impact he had on many people’s lives. We thank Sarah Jurica for organizing this and for her support of the John Ritter Foundation.
Date: Saturday, April 13, 2013
Time: 4:00 p.m. to 6:00 p.m.
Location: Saratoga Paint & Sip Studio, 80 Henry Street, Saratoga Springs, NY 12866
Click here to register: https://www.saratogapaintandsip.com/calendar/john-ritter-foundation-fundraiser/
It can be difficult to find others to talk to who understand what an aortic dissection survivor has been through. The John Ritter Foundation is pleased to pass along this information about a group meeting that one survivor has organized in Michigan. Here are the details:
Chris Kasper (firstname.lastname@example.org) has organized a support and informational group meeting for survivors of aortic dissection, their families, and their caregivers to take place in Ann Arbor, Michigan on Monday, April 22, 2013, from 10:00 a.m. to 12:00 p.m. Eastern time. The meeting will be held at:
University of Michigan
EAA Health & Geriatrics Center
4260 Plymouth Rd.
Ann Arbor, MI 48109
There are three buildings which make up this “campus”. The building where the meeting will be held is the one in the center. When you enter the building, take the elevator to level B1. Exit straight out of the elevator and go through a set of double doors to the left of Java city. The conference room is B1-407 and will be on the right side of the hallway across from the patio.
Please contact Chris directly at email@example.com with any questions.
A subsequent meeting is being planned for July 22, 2013 in the same location. Chris is hoping to make this a quarterly event.
Actor Tyler Ritter; Watkins Little, the “Ridiculously Photogenic Guy;” thoracic aortic disease survivors and an aortic surgeon will be among the 15 Team Ritter runners dedicated to raising money for the John Ritter Foundation for Aortic Health (JRF) at the ING New York City Marathon on Nov. 4, 2012.
Funds from the NYC Marathon raised for the JRF will go to the John Ritter Research Program in Aortic and Vascular Diseases (JRRP) at The University of Texas Health Science Center at Houston (UTHealth) to support research to identify genetic risks for aortic dissections. To donate, visit Edward Norton’s Crowdrise online fundraising community: http://www.crowdrise.com/TeamRitterNYCMarathon2012/fundraiser/johnritterfoundation.
Read the press release here: http://www.uthouston.edu/media/story.htm?id=6dae1471-9736-49a6-bd12-d51bdb74c517
Meet the runners of Team Ritter: Read more
A new clinic devoted to integrated care for aortic disease is able to merge personalized genetic information with clinical care at The University of Texas Health Science Center at Houston (UTHealth). The Multidisciplinary Aortic and Vascular Disease Clinic includes a medical geneticist, genetic counselors, cardiologists, and cardiothoracic and vascular surgeons who specialize in providing care to individuals and families with thoracic aortic aneurysms and dissections, as well as other vascular diseases and cardiac valve abnormalities. The clinic is part of UT Physicians, the clinical practice of the UTHealth Medical School. Read more here: http://www.johnritterresearchprogram.org/2012/08/uthealth-research-clinical-care-merge-aortic-vascular-disease-clinic/
Research teams from The John Ritter Research Program in Aortic and Vascular Diseases at the University of Texas Health Science Center at Houston and Paris, France have discovered a defect in the TGFB2 gene linked to a cluster of systemic complications, including life-threatening thoracic aortic disease and intracranial aneurysms. The new syndrome is similar, but distinct from known syndromes such as Marfan and Loeys-Dietz syndrome. Read more here: http://www.johnritterresearchprogram.org/2012/07/john-ritter-research-program-french-researchers-discover-gene-defect-syndrome-systemic-complications-include-life-threatening-thoracic-aortic-disease/
Doctor Radio is going to focus on aortic dissection this Friday, May 25, 2012. The program airs on Sirius XM from 6:00 – 8:00 a.m. Eastern time. Two NYU surgeons will be interviewed, followed by National Marfan Foundation President and CEO Carolyn Levering (at 7:00 a.m.), and then Amy Yasback, founder of the John Ritter Foundation, and Dr. Dianna Milewicz, professor and director of the John Ritter Research Program at The University of Texas Medical School at Houston (at 7:30 a.m.). Set your alarm and tune in! http://www.siriusxm.com/doctorradio