Resources

Thoracic Aortic Aneurysm and Dissection

Please visit the following websites for more information regarding thoracic aortic aneurysm and dissection:

John Ritter Research Program in Aortic and Vascular Diseases:
www.johnritterresearchprogram.org

Cleveland Clinic Heart and Vascular Center: http://my.clevelandclinic.org/heart/disorders/aorta_marfan/aorticaneurysm.aspx

Stanford Hospital & Clinics: http://stanfordhospital.org/healthLib/greystone/heartCenter/heartConditionsinAdults/thoracicAorticAneurysm.html

National Heart, Blood, and Lung Institute: http://www.nhlbi.nih.gov/health/dci/Diseases/arm/arm_types.html

Methodist Health System: http://www.bestcare.org/mhsbase/mhs.cfm/SRC=SP/SRCN=serv_detail/GnavID=68/servid=420

Genetic Syndromes

For more information about the genetic connective tissues disorders that cause thoracic aortic aneurysm and dissection, please visit the following foundation websites:

Marfan syndrome:  National Marfan Foundation

Loeys-Dietz syndrome:  Loeys-Dietz Syndrome Foundation

Ehlers-Danlos syndrome, vascular type:  Ehlers-Danlos National Foundation; EDS Network CARES Foundation

Turner syndrome:  Turner Syndrome Society of the United States

TAD (Thoracic Aortic Disease) Coalition:  www.tadcoalition.org/tad/