Resources

Thoracic Aortic Aneurysm and Dissection

Please visit the following websites for more information regarding thoracic aortic aneurysm and dissection:

John Ritter Research Program in Aortic and Vascular Diseases:
www.JohnRitterResearchProgram.org

Thoracic Aortic Disease Coalition (TAD Co):  www.tadcoalition.org

International Registry of Acute Aortic Dissection (IRAD):  www.iradonline.org

Cleveland Clinic Heart and Vascular Center: Thoracic Aortic Aneurysm

Stanford Hospital & Clinics: What is a thoracic aortic aneurysm?

National Heart, Blood, and Lung Institute: What Is an Aneurysm?

Methodist Health System: Aortic Dissection at Any Age: The Tyler Kahle Story

Guidelines for the Diagnosis and Management of Patients With Thoracic Aortic Disease:  PDF or journal article (Journal of the American College of Cardiology)

Genetic Syndromes

For more information about the genetic connective tissue disorders that cause thoracic aortic aneurysm and dissection, please visit the following websites:

Marfan syndrome:  National Marfan Foundation

Loeys-Dietz syndrome:  Loeys-Dietz Syndrome Foundation

Ehlers-Danlos syndrome, vascular type:  Ehlers-Danlos National Foundation; EDS Network CARES Foundation

Turner syndrome:  Turner Syndrome Society of the United States

Thoracic Aortic Disease Coalition (TAD Co):  www.tadcoalition.org/tad/4348/Who-is-at-Risk?

Guidelines for the Diagnosis and Management of Patients With Thoracic Aortic Disease:  PDF or journal article (Journal of the American College of Cardiology)

Clinical Genetics Resources

To find a medical geneticist or genetic counselor, please visit the following websites:

American College of Medical Genetics and Genomics:  Find Genetic Services

National Society of Genetic Counselors:  www.nsgc.org