Australasia

The John Ritter Foundation has joined with former professional cricket player and aortic dissection survivor Chris Cairns and his wife Mel to create resources and awareness, as well as advocate for aortic disease patients and families in Australia and New Zealand. More news to come!

Australian Resources

Every day six Australians suffer from a thoracic aortic disease event such has dissection or need for major surgery. Every day an Australian will die from thoracic aortic disease. 1 in 5 sufferers are aged under 50 years and even individuals in their teenage years and twenties are affected.

Genetic Alliance Australia (GA) endeavours to facilitate contact between families/individuals affected by the same, or similar condition, and/or provide information about relevant support groups both nationally and internationally. GA also deals with enquiries about services and facilitates ongoing support for individuals, families, health professionals and other interested groups. GA has an extensive rare disease database representing 1400 conditions and over 3500 individuals and families affected by genetic conditions.

Rare Voices Australia (RVA) is the national peak body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as health, disability and other systems that work for people living with a rare disease.

In Australia genetic information, which includes your personal medical history and results of genetic tests and information about the health of your parents, children, brothers and sisters can have implications for life insurance policies. Read more here.

NALAG is and has been a proud leader and provider of grief support, training and education for over 45 years. They provide a free, confidential, grief and loss support services across NSW, delivered by a team of trained volunteers and staff. They provide telephone support and, in some of our Centres, face to face support and counselling is available. Please note: NALAG NSW does not provide a crisis service. If you or someone you know needs urgent support, please contact a crisis support service, such as Beyondblue on

The Human Genetics Society of Australasia was formed in 1977 to provide a forum for the various disciplines represented under the title of Human Genetics.

New Zealand Resources

Genetic Alliance Australia (GA) endeavours to facilitate contact between families/individuals affected by the same, or similar condition, and/or provide information about relevant support groups both nationally and internationally. GA also deals with enquiries about services and facilitates ongoing support for individuals, families, health professionals and other interested groups. GA has an extensive rare disease database representing 1400 conditions and over 3500 individuals and families affected by genetic conditions.

Rare Voices Australia (RVA) is the national peak body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as health, disability and other systems that work for people living with a rare disease.

In Australia genetic information, which includes your personal medical history and results of genetic tests and information about the health of your parents, children, brothers and sisters can have implications for life insurance policies. Read more here.

Research

The John Ritter Research Program in Aortic and Vascular Diseases and the Montalcino Aortic Consortium are both open to participants in all countries.