The second annual Sofia Gutierrez Brain Aneurysm Awareness Fund Raiser Event will be held from 11 a.m. – 8 p.m. on Saturday, November 10, at the Orange Park Mall in Orange Park, Florida (20 miles south of Jacksonville).  Here is the very touching story of the Gutierrez family’s motivation to find answers about cerebral aneurysms:  Family warns parents about condition that killed daughter.

The event will benefit the John Ritter Foundation for Aortic Health, and all funds raised will go to the Sofia Alejandra Gutierrez Brain Aneurysm Research Fund to support research the John Ritter Research Program in Aortic and Vascular Diseases (JRRP) at the University of Texas Health Science Center at Houston (UTHealth) is doing on the genetics of cerebral aneurysms.  The Director of the JRRP, Dianna M. Milewicz, MD, PhD, will attend and be available to answer questions about the genetics of cerebral and other vascular aneurysms.

The event will feature the Clay County Fire Department, Shands Hospital Trauma One Helicopter, bounce houses, live entertainment, silent auction, door prizes, vendors, and much more.

If you’re in the Orange Park area and looking for something fun for the family to do, come on out!

A new clinic devoted to integrated care for aortic disease is able to merge personalized genetic information with clinical care at The University of Texas Health Science Center at Houston (UTHealth).  The Multidisciplinary Aortic and Vascular Disease Clinic includes a medical geneticist, genetic counselors, cardiologists, and cardiothoracic and vascular surgeons who specialize in providing care to individuals and families with thoracic aortic aneurysms and dissections, as well as other vascular diseases and cardiac valve abnormalities.  The clinic is part of UT Physicians, the clinical practice of the UTHealth Medical School.  Read more here:  http://www.johnritterresearchprogram.org/2012/08/uthealth-research-clinical-care-merge-aortic-vascular-disease-clinic/

The John Ritter Research Program in Aortic and Vascular Diseases announced the opening of an Aortic Disease Clinic as a collaborative partnership with UT Physicians Cardiology, Medical Genetics, and Cardiothoracic and Vascular Surgery.  The clinic’s mission is to provide expert risk assessment, personalized management and integrated clinical care for individuals and families with thoracic aortic aneurysms and aortic dissections, along with other vascular diseases and cardiac valve abnormalities.  

The clinic focuses on patients with thoracic aortic aneurysms and dissections, congenital vascular disorders including bicuspid aortic valve, and other congenital vasculopathies.  The clinic offers long-term cardiology follow-up for patients with imaging surveillance, same-day interpretation of echocardiograms, and timely referrals for surgery or medical genetics evaluation and genetic counseling as appropriate.

Additional information on the John Ritter Research Program and the Aortic Disease Clinic can be found here:  http://www.johnritterresearchprogram.org/2012/03/john-ritter-research-program-ut-physicians-launch-aortic-disease-clinic/.