{"id":55596,"date":"2024-01-10T16:33:51","date_gmt":"2024-01-10T16:33:51","guid":{"rendered":"https:\/\/johnritterfoundation.org\/recursos-de-grupos-de-apoyo\/"},"modified":"2026-11-10T20:51:37","modified_gmt":"2026-11-10T20:51:37","slug":"recursos-de-grupos-de-apoyo","status":"publish","type":"page","link":"https:\/\/johnritterfoundation.org\/es\/recursos-de-grupos-de-apoyo\/","title":{"rendered":"Recursos de grupos de apoyo"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"55596\" class=\"elementor elementor-55596 elementor-41406\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-d1f6677 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"d1f6677\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1fa0a71 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"1fa0a71\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><span class=\"ui-provider a b c d e f g h i j k l m n o p q r s t u v w x y z ab ac ae af ag ah ai aj ak\">Cada camino es m\u00e1s f\u00e1cil con un gu\u00eda&nbsp;<\/span><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e1c8f3d elementor-widget-widescreen__width-initial cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"e1c8f3d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Descubra recursos fiables y aprenda a defender activamente su salud<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b6922ad e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"b6922ad\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ace5c1d elementor-widget__width-initial elementor-hidden-mobile cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"ace5c1d\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_scrolling&quot;:&quot;yes&quot;,&quot;motion_fx_translateY_effect&quot;:&quot;yes&quot;,&quot;motion_fx_translateY_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:2,&quot;sizes&quot;:[]},&quot;motion_fx_translateY_affectedRange&quot;:{&quot;unit&quot;:&quot;%&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:{&quot;start&quot;:0,&quot;end&quot;:100}},&quot;motion_fx_devices&quot;:[&quot;widescreen&quot;,&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1484\" height=\"1006\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377.jpg\" class=\"attachment-full size-full wp-image-55597\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377.jpg 1484w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377-300x203.jpg 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377-1024x694.jpg 1024w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377-768x521.jpg 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377-443x300.jpg 443w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377-600x407.jpg 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377-30x20.jpg 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/800_0748-e1706921267377-15x10.jpg 15w\" sizes=\"(max-width: 1484px) 100vw, 1484px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-22d5142 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"22d5142\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-de63a6a elementor-widget-tablet__width-initial cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"de63a6a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Aorta Advocates<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f5bd741 elementor-widget-tablet__width-initial cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"f5bd741\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<p class=\"elementor-heading-title elementor-size-default\">\u00bfSe enfrenta a un nuevo diagn\u00f3stico y desea conectar con alguien que haya recorrido un camino similar? La funci\u00f3n de un Defensor de la Aorta (Aorta Advocate) no es ser su portavoz, sino capacitarle para defender y gestionar su propia atenci\u00f3n m\u00e9dica o la de su familia. Est\u00e1n a su disposici\u00f3n para ofrecerle recursos e informaci\u00f3n de confianza que le permitan orientarse en su propio proceso. \nTanto si es un paciente a\u00f3rtico, una persona cuidadora, tiene riesgo de padecer la enfermedad o ha perdido a un ser querido a causa de una disecci\u00f3n a\u00f3rtica, The John Ritter Foundation puede ponerle en contacto con un compa\u00f1ero que le comprenda. Nuestros defensores de la aorta tienen entre 18 y m\u00e1s de 65 a\u00f1os y aportan diversas experiencias vitales y relacionadas con la salud a\u00f3rtica. Conecte por videollamada, tel\u00e9fono o correo electr\u00f3nico cuando mejor se adapte a su horario.<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-95e4bd7 cmsmasters-button-align-left cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-cmsmasters-button\" data-id=\"95e4bd7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"cmsmasters-button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-widget-cmsmasters-button__button-container\"><div class=\"elementor-widget-cmsmasters-button__button-container-inner\"><a href=\"https:\/\/johnritterfoundation.org\/es\/aorta-advocates\/\" class=\"cmsmasters-button-link elementor-widget-cmsmasters-button__button cmsmasters-icon-view- cmsmasters-icon-shape- cmsmasters-button-size-lg\" role=\"button\" tabindex=\"0\"><span class=\"elementor-widget-cmsmasters-button__content-wrapper cmsmasters-align-icon-\"><span class=\"elementor-widget-cmsmasters-button__text\">CONECTE CON UN DEFENSOR<\/span><\/span><\/a><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-78a3eff e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"78a3eff\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-b17818c e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"b17818c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-24fc95a cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"24fc95a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u00bfQu\u00e9 debe buscar en un grupo de apoyo o en una comunidad en l\u00ednea?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-194d1e7 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"194d1e7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li>Elija un grupo dinamizado o moderado por profesionales de la salud o moderadores cualificados (por ejemplo, un trabajador social, un profesional de la enfermer\u00eda o de la salud mental). Su orientaci\u00f3n puede ayudar a garantizar que los debates sean constructivos y solidarios, asegurando que todos tengan la oportunidad de participar.<\/li><li>Confirme que el grupo de apoyo prioriza la privacidad y la confidencialidad de los participantes. Esto es especialmente importante al hablar sobre informaci\u00f3n m\u00e9dica personal y experiencias \u00edntimas.<\/li><li>Considere la posibilidad de buscar terapia o asesoramiento individual. Los grupos de apoyo no son adecuados para todo el mundo ni sustituyen la atenci\u00f3n de salud mental prestada por un profesional cualificado. Un profesional de la salud mental puede ofrecerle apoyo y orientaci\u00f3n personalizados. Tambi\u00e9n puede ponerle en contacto con recursos u otras personas que afronten dificultades similares.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-a705814 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"a705814\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-fec94ba cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"fec94ba\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Grupos de apoyo y recursos<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e278b04 elementor-widget__width-initial cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"e278b04\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Tenga en cuenta que The John Ritter Foundation no supervisa el contenido de estos recursos y no puede garantizar la exactitud de toda la informaci\u00f3n publicada.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d1f9149 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"d1f9149\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-1eabc06 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"1eabc06\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-3386b21 e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"3386b21\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-66ac060 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"66ac060\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.upmc.com\/services\/heart-vascular\/about\/community-programs-outreach\/aortic-support-group\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"723\" height=\"260\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/UPMC.png\" class=\"attachment-large size-large wp-image-55598\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/UPMC.png 723w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/UPMC-300x108.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/UPMC-600x216.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/UPMC-30x11.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/UPMC-28x10.png 28w\" sizes=\"(max-width: 723px) 100vw, 723px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fdb73d1 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"fdb73d1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.upmc.com\/services\/heart-vascular\/about\/community-programs-outreach\/aortic-support-group\" target=\"_blank\">University of Pittsburgh Medical Center \u2013 Grupo de apoyo a\u00f3rtico<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ed4ae13 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"ed4ae13\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Dirigido por los expertos del UPMC Center for Thoracic Aortic Disease (CTAD), el Grupo de apoyo a\u00f3rtico est\u00e1 a su servicio. Conecte y comparta experiencias con otras personas mientras aprende sobre su enfermedad a\u00f3rtica o la de su ser querido. Este grupo de apoyo gratuito est\u00e1 abierto a todos los pacientes y familiares interesados. Si desea unirse o recibir m\u00e1s informaci\u00f3n sobre el grupo de apoyo de CTAD, p\u00f3ngase en contacto con nuestro coordinador en <a href=\"mailto:AorticSupport@upmc.edu\">AorticSupport@upmc.edu<\/a>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-51363ec e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"51363ec\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-1c52d5a e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"1c52d5a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-33b00ea cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"33b00ea\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/mendedhearts.org\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1024\" height=\"284\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-1024x284.png\" class=\"attachment-large size-large wp-image-55599\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-1024x284.png 1024w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-300x83.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-768x213.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-1536x425.png 1536w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-860x238.png 860w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-600x166.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg-30x8.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/MendedHearts-logo-reg.png 1560w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-af07f80 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"af07f80\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/mendedhearts.org\/\" target=\"_blank\">Mended Hearts, Inc.<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3dd2698 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"3dd2698\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Como el principal programa de apoyo entre iguales del pa\u00eds para pacientes con cardiopat\u00edas y sus familias, The Mended Hearts, Inc. ha prestado servicio a millones de personas proporcionando apoyo y formaci\u00f3n, concienciando sobre los retos a los que se enfrentan quienes viven con enfermedades card\u00edacas y abogando por mejorar la calidad de vida en todas las etapas de la vida. Mended Hearts, Inc. cuenta con delegaciones y grupos locales en todo el pa\u00eds. Encuentre una filial o grupo cercano <a href=\"https:\/\/mendedhearts.org\/connect\/chapters_groups\/find-your-chapter\/\">aqu\u00ed<\/a>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3fac48e e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"3fac48e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-92e0072 e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"92e0072\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2407dc1 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"2407dc1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.aortichope.org\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"425\" height=\"208\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/aortic-hope.png\" class=\"attachment-large size-large wp-image-55600\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/aortic-hope.png 425w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/aortic-hope-300x147.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/aortic-hope-30x16.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/aortic-hope-20x10.png 20w\" sizes=\"(max-width: 425px) 100vw, 425px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-dc671b2 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"dc671b2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.aortichope.org\/\" target=\"_blank\"><u>Aortic Hope<\/u><\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a0eff68 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"a0eff68\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Aortic Hope es una comunidad creada por supervivientes y cuidadores de personas con enfermedades a<span class=\"outlook-search-highlight\" data-markjs=\"true\">\u00f3rticas<\/span>.<\/p><p>Infundan <span class=\"outlook-search-highlight\" data-markjs=\"true\">esperanza<\/span>, crean conciencia y brindan apoyo durante la recuperaci\u00f3n y el tratamiento de las enfermedades a<span class=\"outlook-search-highlight\" data-markjs=\"true\">\u00f3rticas<\/span>. Ofrecen diversas iniciativas que incluyen grupos privados de apoyo en l\u00ednea, entrevistas interactivas en directo con m\u00e9dicos en su canal de YouTube AHTV, recursos educativos como <span class=\"outlook-search-highlight\" data-markjs=\"true\">Aortic<\/span> Dissection: The Patient Guide y mucho m\u00e1s.<\/p> \t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-50854e5 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"50854e5\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1c27fb9 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"1c27fb9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Organizaciones espec\u00edficas para cada enfermedad<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-dbd3e1c e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"dbd3e1c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-b7885f6 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"b7885f6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-95de96a e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"95de96a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1c7d9ab cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"1c7d9ab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/marfan.org\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"174\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/marfan-foundation.png\" class=\"attachment-large size-large wp-image-55601\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/marfan-foundation.png 800w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/marfan-foundation-300x65.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/marfan-foundation-768x167.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/marfan-foundation-600x131.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/marfan-foundation-30x7.png 30w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-12b334f cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"12b334f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/marfan.org\/\" target=\"_blank\">The Marfan Foundation<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-883cd85 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"883cd85\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The Marfan Foundation es una organizaci\u00f3n sin \u00e1nimo de lucro que salva y mejora vidas a la vez que crea una comunidad para todas las personas con afecciones vasculares y a\u00f3rticas gen\u00e9ticas, incluidos los s\u00edndromes de Marfan, Loeys-Dietz y Ehlers-Danlos vascular. Ofrecen una gran cantidad de informaci\u00f3n para usted y sus seres queridos sobre el s\u00edndrome de Marfan y trastornos relacionados, as\u00ed como recursos \u00fatiles para ni\u00f1os y adolescentes. Puede encontrar apoyo para personas y familias <a href=\"https:\/\/marfan.org\/resources\/\">aqu\u00ed<\/a>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3df7d74 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"3df7d74\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-512b46f e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"512b46f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1bb7258 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"1bb7258\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.loeysdietz.org\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"182\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-1024x182.png\" class=\"attachment-large size-large wp-image-55602\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-1024x182.png 1024w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-300x53.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-768x136.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-1536x273.png 1536w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-2048x364.png 2048w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-860x153.png 860w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-600x107.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/loeys_dietz_syndrome_foundation-30x5.png 30w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1730c74 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"1730c74\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.loeysdietz.org\/\" target=\"_blank\">Loeys-Dietz Syndrome Foundation<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5a8262e cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"5a8262e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La Loeys-Dietz Foundation se dedica a promover la formaci\u00f3n sobre el s\u00edndrome de Loeys-Dietz y los trastornos del tejido conectivo relacionados entre los profesionales sanitarios y las comunidades, con el fin de facilitar la identificaci\u00f3n, el diagn\u00f3stico y el tratamiento de esta afecci\u00f3n. Adem\u00e1s, proporcionan una red de apoyo para personas, progenitores y familias afectadas por el s\u00edndrome de Loeys-Dietz.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1e62e0a e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"1e62e0a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-0d1ffa9 e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"0d1ffa9\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ddb9f40 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"ddb9f40\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/thevedsmovement.org\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"457\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-1024x457.png\" class=\"attachment-large size-large wp-image-55603\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-1024x457.png 1024w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-300x134.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-768x343.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-1536x686.png 1536w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-2048x914.png 2048w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-672x300.png 672w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-600x268.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-30x13.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Logo_2020-1-e1706218020796-22x10.png 22w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6ac1345 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"6ac1345\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/thevedsmovement.org\/\" target=\"_blank\">The VEDS Movement<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ad6413b cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"ad6413b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La misi\u00f3n de The VEDS Movement es salvar vidas y mejorar la calidad de vida de las personas con s\u00edndrome de Ehlers-Danlos vascular (SEDV).<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f8dfc54 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"f8dfc54\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-a4c3ed1 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"a4c3ed1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-59a7d12 e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"59a7d12\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-34d9bab cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"34d9bab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/thevedsmovement.org\/research\/veds-collaborative\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"510\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661.png\" class=\"attachment-large size-large wp-image-55604\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661.png 1024w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661-300x149.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661-768x383.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661-602x300.png 602w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661-600x299.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661-30x16.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/VEDS-Collaborative-Logo-1024x602-1-e1706218191661-20x10.png 20w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3df77ac cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"3df77ac\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/thevedsmovement.org\/research\/veds-collaborative\/\" target=\"_blank\">The VEDS Collaborative<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5c434d8 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"5c434d8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The VEDS Collaborative es un colectivo de pacientes, familiares, investigadores y m\u00e9dicos dedicado a desarrollar un plan de investigaci\u00f3n cient\u00edfica centrado en el paciente para mejorar el abordaje del s\u00edndrome de Ehlers-Danlos vascular y aumentar la calidad de vida de todas las personas afectadas por la enfermedad.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c353254 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"c353254\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-4b4a27d e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"4b4a27d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4af17e8 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"4af17e8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.ehlers-danlos.com\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"147\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/EhlersDanlosSociety.png\" class=\"attachment-large size-large wp-image-55605\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/EhlersDanlosSociety.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/EhlersDanlosSociety-30x16.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/EhlersDanlosSociety-20x10.png 20w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8af32a2 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"8af32a2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.ehlers-danlos.com\/\" target=\"_blank\">The Ehlers-Danlos Society<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7f85c66 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"7f85c66\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The Ehlers-Danlos Society es una comunidad global de personas afectadas, cuidadores, profesionales sanitarios y colaboradores dedicados a salvar y mejorar la vida de quienes padecen los s\u00edndromes de Ehlers-Danlos (SED), los trastornos del espectro de hipermovilidad (TEH) y afecciones afines. Puede encontrar excelentes recursos comunitarios, incluidos grupos de apoyo, <a href=\"https:\/\/www.ehlers-danlos.com\/community-resources\/\">aqu\u00ed<\/a>. La EDS Society tambi\u00e9n dispone de una <a href=\"https:\/\/www.ehlers-danlos.com\/eds-helpline\/?fbclid=IwAR3ghrL2QzYrnKJmVSDAq59Q2onp0hSjOZO-0GcAivf1dmrtDx6zUUxyDGU\">l\u00ednea gratuita de ayuda telef\u00f3nica y por correo electr\u00f3nico<\/a>. Los pacientes con SEDV confirmado (Ehlers-Danlos vascular) pueden encontrar una atenci\u00f3n m\u00e1s adaptada en grupos espec\u00edficos para esta variante.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d0bcb64 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"d0bcb64\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-436e272 e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"436e272\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-672cdfb cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"672cdfb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.turnersyndrome.org\/home\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"432\" height=\"170\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/TurnerSyndromeSociety-e1706218694391.png\" class=\"attachment-large size-large wp-image-55606\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/TurnerSyndromeSociety-e1706218694391.png 432w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/TurnerSyndromeSociety-e1706218694391-300x118.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/TurnerSyndromeSociety-e1706218694391-30x12.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/TurnerSyndromeSociety-e1706218694391-25x10.png 25w\" sizes=\"(max-width: 432px) 100vw, 432px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4c735fc cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"4c735fc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.turnersyndrome.org\/home\" target=\"_blank\">Turner Syndrome Society of the United States<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d5106a9 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"d5106a9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La TSSUS atiende las necesidades fundamentales y diversas de la comunidad del s\u00edndrome de Turner. La TSSUS es la mayor organizaci\u00f3n del mundo de apoyo a personas con ST y coordina iniciativas con organizaciones nacionales e internacionales de ST, m\u00e9dicos e investigadores.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-8d8edf7 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"8d8edf7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a46b430 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"a46b430\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Organizaciones espec\u00edficas por pa\u00eds y regi\u00f3n<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5499176 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"5499176\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-bdfc5cc e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"bdfc5cc\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-860210e e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"860210e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b411573 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"b411573\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.gadacanada.ca\/gada-canada\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"826\" height=\"719\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150.png\" class=\"attachment-large size-large wp-image-55607\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150.png 826w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150-300x261.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150-768x669.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150-345x300.png 345w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150-600x522.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150-30x26.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/GADALogoTM_Clr-e1706218764150-11x10.png 11w\" sizes=\"(max-width: 826px) 100vw, 826px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2f234b8 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"2f234b8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.gadacanada.ca\/gada-canada\" target=\"_blank\">GADA \u2013 Genetic Aortic Disorders Association Canada<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7951d7d cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"7951d7d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Anteriormente conocida como Canadian Marfan Association, GADA contin\u00faa dedicada a salvar vidas y propiciar un futuro prometedor para las personas que viven con el s\u00edndrome de Marfan y otros trastornos a\u00f3rticos gen\u00e9ticos mediante la educaci\u00f3n, la concienciaci\u00f3n, el apoyo y la investigaci\u00f3n.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-a1f3efe e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"a1f3efe\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-7561fc0 e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"7561fc0\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e9440fc cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"e9440fc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/vascern.eu\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"508\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-1024x508.png\" class=\"attachment-large size-large wp-image-55608\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-1024x508.png 1024w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-300x149.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-768x381.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-1536x762.png 1536w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-605x300.png 605w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-600x298.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-30x16.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern-20x10.png 20w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/Vascern.png 2000w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9af8288 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"9af8288\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/vascern.eu\/\" target=\"_blank\">VASCERN<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e0a649b cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"e0a649b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La Red Europea de Referencia sobre Enfermedades Vasculares Raras Multisist\u00e9micas (VASCERN) re\u00fane a profesionales sanitarios altamente especializados y a sus equipos multidisciplinares, junto con pacientes y la comunidad cient\u00edfica, para abordar los retos a los que se enfrentan los pacientes, sus familias y los m\u00e9dicos en este campo de especializaci\u00f3n. El grupo de trabajo de HTAD se fundamenta en centros multidisciplinares de excelencia que han estado colaborando y generando gran parte de los avances recientes en la comprensi\u00f3n de las enfermedades hereditarias de la aorta tor\u00e1cica.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-447b545 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"447b545\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-2a606db e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"2a606db\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-054ff6f cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-image\" data-id=\"054ff6f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/aorticdissectioncharitabletrust.org\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"292\" src=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/AorticDissectionCharitableTrust.png\" class=\"attachment-large size-large wp-image-55609\" alt=\"\" srcset=\"https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/AorticDissectionCharitableTrust.png 800w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/AorticDissectionCharitableTrust-300x110.png 300w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/AorticDissectionCharitableTrust-768x280.png 768w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/AorticDissectionCharitableTrust-600x219.png 600w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/AorticDissectionCharitableTrust-30x11.png 30w, https:\/\/johnritterfoundation.org\/wp-content\/uploads\/2024\/01\/AorticDissectionCharitableTrust-27x10.png 27w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9b575ea cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"9b575ea\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/aorticdissectioncharitabletrust.org\/\" target=\"_blank\">The Aortic Dissection Charitable Trust<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-aa16b2e cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"aa16b2e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The Aortic Dissection Charitable Trust es la organizaci\u00f3n ben\u00e9fica del Reino Unido e Irlanda que une a <strong>pacientes<\/strong>, <strong>familias<\/strong> y a la <strong>comunidad m\u00e9dica<\/strong> con el objetivo com\u00fan de mejorar el diagn\u00f3stico, aumentar la supervivencia y reducir la discapacidad derivada de la disecci\u00f3n a\u00f3rtica.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b375f39 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"b375f39\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-fd64a95 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"fd64a95\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/johnritterfoundation.org\/es\/australasia\/\">Australia y Nueva Zelanda<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b99383e cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"b99383e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The John Ritter Foundation se ha asociado con Chris Cairns y su esposa Mel para recopilar recursos e informaci\u00f3n destinados a pacientes con enfermedades a\u00f3rticas y a sus familias en Australia y Nueva Zelanda.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6d1f142 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"6d1f142\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a3c1731 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"a3c1731\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Informaci\u00f3n general y blogs sobre la convivencia con la disecci\u00f3n a\u00f3rtica<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7832aa3 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"7832aa3\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-6e2976e e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"6e2976e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6db5f2f cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"6db5f2f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.dhzb.de\/fileadmin\/user_upload\/relaunch\/11_Downloads\/Pat_Info_Aorta_en_s.pdf\" target=\"_blank\">Informaci\u00f3n para pacientes: Aorta: enfermedades, diagn\u00f3stico y tratamiento<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-31a0826 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"31a0826\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Una gu\u00eda para pacientes orientada a comprender la aorta, su funcionamiento y sus patolog\u00edas. Esta gu\u00eda ofrece a los pacientes, a sus familias y a las personas interesadas en el tema una informaci\u00f3n exhaustiva y detallada: sobre la aorta, sus enfermedades y los m\u00e9todos de prevenci\u00f3n, diagn\u00f3stico y tratamiento. El Deutsches Herzzentrum Berlin es un centro de investigaci\u00f3n m\u00e9dica de Berl\u00edn (Alemania) especializado en enfermedades cardiovasculares y trasplantes cardiopulmonares.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c40dc93 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"c40dc93\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c396346 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"c396346\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"https:\/\/www.rareconnect.org\/en\" target=\"_blank\">RareConnect<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0776020 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"0776020\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Una plataforma segura y f\u00e1cil de usar donde los pacientes de enfermedades raras, sus familias y las organizaciones de pacientes pueden crear comunidades en l\u00ednea e interactuar a trav\u00e9s de diferentes continentes e idiomas. RareConnect colabora con los principales colectivos de pacientes de enfermedades raras del mundo para ofrecer comunidades globales en l\u00ednea que permiten conectar en torno a las cuestiones que les afectan en su d\u00eda a d\u00eda.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-de0e2a3 e-con-full e-flex cmsmasters-block-default e-con e-child\" data-id=\"de0e2a3\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-95acac9 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"95acac9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><a href=\"http:\/\/www.aorticwarriors.org\/home.html\" target=\"_blank\">Aortic Warriors<\/a><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-202e76d cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"202e76d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Aortic Warriors naci\u00f3 de la iniciativa de un peque\u00f1o grupo de supervivientes de disecci\u00f3n a\u00f3rtica que defienden que ning\u00fan superviviente deber\u00eda sentirse solo jam\u00e1s. Brindan apoyo a los supervivientes de disecci\u00f3n a\u00f3rtica poni\u00e9ndolos en contacto con otros supervivientes.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7e23577 e-flex e-con-boxed cmsmasters-block-default e-con e-parent\" data-id=\"7e23577\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-da968f0 cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-heading\" data-id=\"da968f0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Comunidades en redes sociales:<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b67658d e-flex e-con-boxed cmsmasters-block-default e-con e-child\" data-id=\"b67658d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e4e364a cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"e4e364a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Las redes sociales cuentan con diversas comunidades que ofrecen recursos y apoyo para pacientes, allegados y familias afectados por aneurismas y disecciones a\u00f3rticas. Entre estos grupos se incluyen:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f9d80ee cmsmasters-block-default cmsmasters-sticky-default elementor-widget elementor-widget-text-editor\" data-id=\"f9d80ee\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><a href=\"https:\/\/www.facebook.com\/groups\/2283898552\/\" target=\"_blank\" rel=\"noopener\">Concienciaci\u00f3n sobre el aneurisma de aorta abdominal<\/a><\/p><p><a href=\"https:\/\/www.facebook.com\/groups\/acta2\" target=\"_blank\" rel=\"noopener\">Aneurisma y disecci\u00f3n de aorta tor\u00e1cica hereditarios relacionados con ACTA2<\/a><\/p><p><a href=\"https:\/\/www.facebook.com\/groups\/228625783816941\" target=\"_blank\" rel=\"noopener\">S\u00edndrome de disfunci\u00f3n del m\u00fasculo liso por ACTA2<\/a><\/p><p><a href=\"https:\/\/www.facebook.com\/groups\/aortic.aneurysm.awareness.network\/\" target=\"_blank\" rel=\"noopener\">Red de concienciaci\u00f3n sobre el aneurisma a\u00f3rtico<\/a><\/p><p><a href=\"https:\/\/www.facebook.com\/groups\/aorticdissectionsurvivors\/\" target=\"_blank\" rel=\"noopener\">Grupo de apoyo para la disecci\u00f3n a\u00f3rtica<\/a><\/p><p><a href=\"https:\/\/www.linkedin.com\/pulse\/basic-toolbox-patients-aortic-dissection-timo-s%C3%B6derlund\/\" target=\"_blank\" rel=\"noopener\">Caja de herramientas de informaci\u00f3n <u>esencial<\/u> para pacientes con enfermedad a\u00f3rtica<\/a><\/p><p><a href=\"https:\/\/www.facebook.com\/groups\/114213605556\/\" target=\"_blank\" rel=\"noopener\">Supervivientes de disecci\u00f3n a\u00f3rtica<\/a><\/p><p><a href=\"https:\/\/www.diseasemaps.org\/aortic-dissection\/\" target=\"_blank\" rel=\"noopener\">DiseaseMaps<\/a><\/p><p><a href=\"https:\/\/www.facebook.com\/groups\/574415538035395\" target=\"_blank\" rel=\"noopener\">Aortic Athletes<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Cada camino es m\u00e1s f\u00e1cil con un gu\u00eda&nbsp; Descubra recursos fiables y aprenda a defender activamente su salud Aorta Advocates \u00bfSe enfrenta a un nuevo diagn\u00f3stico y desea conectar con&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_eb_attr":"","inline_featured_image":false,"footnotes":""},"class_list":["post-55596","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.7 (Yoast SEO v28.7) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Recursos de grupos de apoyo | John Ritter Foundation<\/title>\n<meta name=\"description\" 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