I’m sure you must know how many letters we get that are just absolutely heartbreaking. I know from personal experience and from getting to know so many families affected by aortic aneurysm and dissection that sharing our stories is sometimes painful. I also know that it is exactly these kinds of stories that inspire the public to learn more about aortic dissection and to evaluate their own family’s risk.
In the spirit of bringing attention to our cause: may I please have your permission to reprint your story or excerpts from it on the John Ritter Foundation website? Names of hospitals, doctors, and all proper names (unless you specify otherwise) will be edited out and only your first name and last initial will be included. Also, I would love to include a photo. Please write back with your permission regarding the publication of your story and your photos.
Aortic aneurysm/dissection is often inherited. All first-degree relatives of survivors or victims of an aortic dissection should be scanned for an aneurysm of their aorta. I would also like your permission to send your story along to Dr. Dianna Milewicz, the geneticist at the University of Texas Medical School at Houston and Director of the John Ritter Research Program in Aortic and Vascular Diseases, and to Dr. Anthony Estrera (Cardiothoracic Surgeon) for their thoughts.
In the meantime, I urge you to visit the John Ritter Research Program (www.johnritterresearchprogram.org) to learn about the research studies going on regarding aortic aneurysms and whether you might be eligible to participate.
Feel free to call us at JRFoundation, but all permission for reprinting and sharing your story, photo and/or email will have to be written.
The John Ritter Foundation for Aortic Health
11901 Santa Monica Blvd. #410
Los Angeles, CA 90025
or email to email@example.com